I Would Rather It Say She Slipped on a Banana Peel!

Usually I like to be pretty positive,

the other day started like any other,

Up early, morning coffee, some blogging,

then time for a lovely morning shower.

A while back I realized I needed one of those shower chairs

and a while back I told you how it had a slight crack in it

and had pinched my derriere in the shower,

no skin off my butt,

except actually there was,

now the battle of the shower chair continues

and it kicked more than my butt this time.

It kicked my whole body!

The battle in the shower also

affected my drawing skills too.

Like I said just brutal.

And this is what remains of the chair.

But meanwhile back in the shower,

I went down with my feet stuck in the air,

my head sort of on the back of the tub,

my stomach was probably up over the tub,

the girls were darn near smothering me,

and somehow I managed to tear my hamstring.

So if you thought I probably got up gracefully,

I would have to say I think not, okay I know not!

And as if that was not bad enough,

I had cold water pouring down on me

because I had a cataplexy spell

due to being startled when it broke,

so I don't know how long I lay there.

The good news

I did manage to get up

and get warm.

Since my adventure I have not been getting around the best.

My leg is really sore and I am amazed at the

ridiculous situations I get myself into.

Now I am going to call the 

supplier about the chair,

what are the odds this story goes over well.

That chair was supposed to help me,

it darned near killed me.

Imagine that on your tombstone,

broke chair alone in shower.

I think I would rather have it say

slipped on banana peel.

............

So how have you been?

I know I am blessed and on the mend,

and lucky me I see the humor in these situations,

but hubby has to be careful when he comes

home from work,

because when he asks

'How was your day?"

........

well he just never knows what he will hear.

Have a great week,

Be your best,

Cinner

New Discovery Sounds Trigger My Bad Eating!

Hi Everyone, thank you for the wonderful comments

on the last post, I finally got a chance to answer back to each one,

so thank you for your understanding.

I realized something new about myself today,

I knew I liked food because of visual presentation,

And there are certain smells that can be so tempting.

Today I realized that sounds trigger me into thinking of certain foods.

Bees buzzing in my garden makes me think of honey

and then peanut butter and honey sandwiches.

How silly is that.

I live in a city where I hardly ever hear the whistle of a train,

Tonight because of the way the wind was blowing

I thought of the farm where I grew up

and one of the favorite treats were

fresh homemade buns with butter and jam.

How do you go from a whistle blowing to that.

Birds singing in the morning makes me

want a morning coffee with creamer.

The sixties music makes me want Root beer and a Burger.

Now I am not saying always but it was surprising for me

to realize the correlation between the two.

Every evening at 530 the ice cream truck goes by.

playing the music that sounds like a fair,

and though I can't see the truck I automatically

start thinking ice cream and even cotton candy.

Batter out strike three

makes me want a hot dog.

Running the tub for a long bath

makes me want a glass of wine.

The sound of coughing and sneezing makes

me crave chicken noodle soup.

The sound of a crackling fire makes me want to

have marshmallows even though I don't

really like marshmallows.

The crack of a beer can being opened

makes me want to eat pizza.

and it is not my beer being cracked open.

The sound of an angry voice not even directed at me

makes me want some comfort food.

The sound of different accents

makes me crave certain foods.

I must be either a nut bar or a food addict.

Thank goodness when I turn on my treadmill

and I hear the beep, beep,

it makes me want to exercise.

Ha maybe I need to start wearing ear plugs for sounds that trigger me,

A really dark pair of glasses so I won't find food visually appealing.

Well I may as well get a noseclip so I can not smell any lovely aromas

Oh and I should wear gloves so that I won't be able to touch food either

although I don't think that really triggers me, unless I were to put a finger

in say mashed potatoes, yes you could not hold me back

and the shouting of encouraging voices saying

Cinner, no, no don't do it

hopefully would snap me back to reality

where hopefully I could pick up my dignity that has fallen

flashing its feet on the floor.

Egads do you think I woke up hungry?

I am starting to think so.

I will try to go back to bed but I know when that alarm

rings in the morning hubby better be out of the way

or a Cinner with dark glasses, wearing gloves,

a nose clip and one ear plug

will hit the floor running and when that fridge door

opens anything is game. It is a good thing I got my food

ready for tomorrow, it is also a good thing I can't drive

or I would be in line at Tim Hortons for a  Breakfast Baget,

a double double, oh and well just throw in a box of Tim Bits.

Just kidding I am going to stick to plan,

I am going to do everything I can to.

My nephews are leaving Friday

and I know when we say Good bye,

I will want to eat something right away.

Maybe it is a good thing that I am aware of what I do.

It is up to me to change my Triggers and to 

break my habits

So if you see me in line somewhere don't honk

that may make me think

I have quacked up.

I know this too shall pass.

Have a great day.

Do you have trigger sounds.

I would love to hear your stories.

I Have To Admit

I Have To Admit

today with a strong wind I could topple right over,

be gentle with me whispering wind.

I Have To Admit

today I feel every ache and pain,

I could cry tears like the Tsunami in Japan.

I Have To Admit

today I am as unsure as the weather.

..................

There Should Be a Limit Even For Me!

This is the cats favorite place in the whole house.

I put a rug on it otherwise she rolls around on it

and gets hair all over it.

I set up a hook system so I can lift my curtains so they are not in the way.

I love the treadmill and believe it was the best money I have spent.

Great to have this winter that is for sure.

I went outside yesterday

my usual happy self.

a long sleeve shirt, a vest, my jacket,

huge scarf tied around my neck and head,

mitts, heavy ski pants, big polar boots.

I open my door , I take one step out,

the outside door is ripped from my hands by a gust of wind

and once again I thought to myself.....

You have got to be kidding me

if anyone up there can hear me

please let it stop snowing!

Hello can anybody hear me?

So I get started bending knees, 

minus 30, shoveling, ice crystals forming on my face from my breath.

I would do as much as I could, then stop, lean on the fence,

catch my breath, do some more, into the house to warm up.

Four separate times I made it outside,

not one soul did I see anywhere.

Did I get the snow done.

Not even near, but I had a good workout,

got lots of fresh air.

I open my back door to let my dog out,

no steps to be seen, the wind had blown enough snow

that it was up above the bottom of the door

and I had to push to get the dog out.

It was a bit drafty, the cold air came rushing up my nightgown,

shiver to the top of my head.

This is the most snow we have had since 1976.

I was a kid then, building igloos, making tunnels in the snow banks,

sledding.

Now I want to be a warm kid,

sipping my coffee, in a big warm housecoat,

slippers and a blanket.

Until this snow slows down my treadmill is going to have to wait,

and I can feel like I have spent all this money for my cat to sit on it.

At least I am not using it to hang clothes on.

lol

I have noticed my tops are all getting big on me.

Will have to measure soon.

..........

March 1st...one day closer to Spring,

it's cold and I don't want salads,

I mean I love salads.

I think it is a soup day.

Hope you have a good day.

It Erupted and went whizzing past my head.

I had my fair share of water today.

My day started good,

I woke at 9 pm and I could smell fresh perked coffee.

My phone rang and my sister in law was coming over about ten,

great just enough time for me to straighten things a bit.

I had my coffee which was the last in the pot.

I always enjoy my morning coffee,

then I went to put on a new pot so it would be ready when SIL

came to visit.,

and that is when my plans for the day blew up so to speak.

I turned the cold tap, I turned the hot tap and I felt it sllip as I turned it.

And there she blew, the hot water tap blew off hit my cupboards,

the tap fell somewhere and water shot out of my tap

spraying everywhere. keep this in mind about 3 inches around

with the force of  volcano. I tried to put a pot over the water

so that at least the water would go into the sink,

by this time I had about two inches of water everywhere..

the pot was not working so I got a great big towel

and then set a big painted rock on top of it.

Great it was going in the sink.

Now I know you are thinking well just shut off the hot water valves.

I can not get to them because they are in the crawl space,

and the trap door is too heavy for me to lift.

The sink was almost full, I got a bucket and started draining into the bathtub.

as soon as things seemed under control in the sink,

I called my husband at work.

I say Honey the hot water tap in the kitchen blew off,

He laughs and says, yeah right,

I think to myself are you kidding me.

I said I am serious and there is water everywhere.

Ok he says I will be there soon

It took him 45 minutes to show up from work,

He comes in and says did you lock up the cat,

what, well he needed to get into the crawl space and the cat tries to sneak down thee.

I say no I have not had a chance to catch the cat between buckets of water.

So he goes down stairs shuts off the water and then says are you okay,

Sure I am fine I say. I swear in the back porch I had freezing water back there,

my windows were so steamed up, my house felt like a sauna, looked like an ice rink and

a swimming pool.

Yes I am just peachy keen.

So he proceeds to fix it, which he had already done last Saturday,

and he says well that should hold it, should hold it,

I need a definate/////will hold it.

Okay honey I gotta go he says,

I kissed him goodbye and thanked him for saving the day.

As soon as he was out the door I headed for the fridge,

and stood there looking and thought why are you here,

what are you looking for.

I just wanted to eat something to feel better,

which I knew would make me feel worse.

So instead I grabbed some cold water,

sat on the couch, deep breathed and fell asleep

after two hours I woke and stood up and felt like I could hardly move.

I figure I lifted about 90 buckets of water

well it was one way to get a workout,

and I thought about water most of the day,

so I drank way over my 8 glasses.

Tomorrow I will finish washing all the towels and blankets

I used to sop things up with.

..............

Progress today was if this would have happened a year ago,

I would have been startled and the Cataplexy would have caused me

to fall and not be able to move. there could have been some serious damage,

and maybe I would have burnt myself.

So looking at the positive

I got to see my hubby a few moment in the day,

I got my floors washed., I got some exercise,

and now I have a reason to surf the net

for new taps and a new sink.

and I did not overeat.

Sometimes you just gotta go with the flow

and I don't mean water.

So how was your day?

                                               

A 2 day Break, it feels like a week.

The sun was beaming in the window this afternoon for about ten minutes.

It was the best ten minutes ever.

I sit right next to where these flowers were,

so I got some sunshine too,

The warmth was heaven.

Now these tulips put a huge smile on my face the other day

when Hubby brought them home.

As soon as I saw the bright pink and yellows

my spirits seemed to lift.

I laughed when I noticed the last time I posted

was Wednesday and here it is Friday,

but I feel  good again, so so much for a break,

My surgeries are just playing the waiting game to get in,

but I have restless nights because of the hernia,

so if I fall behind my sleep then I fall.

take for example last night,

I get up in the middle of the night go to the computer room,

after I am coming out, hubby is just coming out of the bedroom,

it was dark, I had not heard him and he says hey what are you doing up?

I was startled since I did not know he was there,

another thing that triggers Cataplexy is being startled,

my legs went limp and down I went,

Hubby turns the light on and is telling me You will be okay,

I can't answer but I am thinking to myself,

Put on some shorts for land sakes,

I am thinking this as I am sitting up.

I say to him, what were you doing in the hallway, and why did you scare me,

He says I thought you were sleeping,

 I was trying to be quiet.

I said to him Maybe next time you are helping me you could be wearing your pjs.

That is not what I want to be seeing when I am lying on the floor.,

and now he had me laughing again.,

the look on his face was priceless and I was just thinking,

please stop making me laugh, I just want to get up and walk

and go to bed. Finally we make it there and he asks if I am okay,

yes I am fine, I thanked him for helping me up.

I told him we need to figure out a system so that does not happen again.

you just never know when it will hit.

About a half an hour ago, the light goes on in the bedroom,

I hear in his deep voice, Just letting you know I am going through.

Okay thanks, all was good.

Thank you God Amen I muttered to myself.

.....................

sleep, soup, water, was my regime the last few days.

the flowers above were to make me feel better,

which they did.

Hubby said when he gave them to me,

 Its  good time to get them after Valentines day.

they were on sale, and they were right at the counter,

I started to laugh, he just makes me laugh all the time,

thats why my sleep is so important.

............

I have thought if I ever wrote a book these might be some good titles,

I am Falling Down Again,

Laugh Until It Hurts

Dying Laughing

Another Laughing Matter

Laughter Can Really Hurt

.............

Sorry I am rambling on. Thank you all for your kind wishes.

Oh and Best News of All.

Hubby and I are starting to work out in the morning.

that should be fun.

as for the rest of the day I don't think

we will be venturing far,

it is minus forty here with the wind chill.

I hope you have a wonderful weekend,

remember life is what we make it.

Laugh at yourself and the world laughs with you.

remember we can do anything and everything

as best as we know how.

Be Your Very Best and I hope you

 Have Your Very Best Day Ever!

Cinner

May We All Find Our Sexy!

glitter-graphics.com  

There is something to be said for being comfortable  in ones own skin.

I believe I am.

Skinny has never been important to me.

Healthy on the other hand has.

I believe woman of all shapes and sizes are beautiful, gorgeous.

Confidence is the most intriguing thing  a person can have.

We have to love ourselves as we are and that is when we can work on changing

the baggage we carry around with us.

Sure if I get smaller and feel sexier that will be a bonus,

but if I can get healthier and walk to the end of the block without being out of breath

that is what will keep me working on my goal, 

it is my health, right now if someone thinks I don't look good,

well they don't have to look at me.

I may not be every idea of what a woman should look like,

but this is me, we all have different reasons for changing lifestyles,

I think the majority is to feel healthier.

That was my feeling once I became ill with Cataplexy.

Today I saw the Surgeon and it will be a wait

but my hernia will be fixed along with other stomach complications.

that on another post to follow..

So take a good look and be real.

It is not an easy road,

it is the hardest job we will probably ever accomplish,

we deserve to live the lives we want,

so I am holding my bottle of water high,

and saying their is a Diva in all of us..

You may want to check out the drawings by Dwayne Breyer 

of Hilda.

I think she is the sexiest of all times.

I love her too..

.......

Lastly I have a girlfriend

whom has been working on losing the last ten pounds,

it used to drive me crazy,

I would think it is only ten pounds.

To her that ten pounds is as important to her

as my excess weight.

She tries so hard, so we all have our own demons.

May we all have a wonderful day

and no matter what belief in yourself.

I know I can do anything as long as I get a good night rest..

It takes 3 weeks to make something a habit.

It is a new month and a new day.

Hugs.

A Cataplexy Story.

Hi Everybody, I thought I would show this video. It may make your understanding a bit clearer what some people go through with cataplexy.  I watched quite a few this morning, there was one lady whom was so depressed by her condition. No there is no cure.......My advice to anyone with Cataplexy is that once you get past the point of wanting to be your old self, like you used to, and you realize your not broken but that you have to live differently than you did before. I know it is hard to face change, but in many ways my life has improved on the fact that I can appreciate the days when I don't fall down, I appreciate the laughs that I can have with friends, so my head falls forward, and sometimes I can't move for a few minutes, I just make sure I am sitting down. Because with Narcolepsy there is so much uncontrolled sleep, I sure take advantage of the waking moments....There are 135,000 people in North America that have this. I have Severe Cataplexy and when it got its very worst there were  very few moments in a day that I would not be having an attack, that meant no walking, no going out, no working, no holding children or babies, no going on escalators or stairs, or watching comedy shows, for some no cooking, and the list went on and on......Luckily  I  am on the right medications that my life has become much more bearable......I know everyone is different and deals with things on different levels....If you do not have a good doctor, keep looking until you find one, and I believe we know our bodies the best.....so if you are put on a medication that is not helping or you feel depressed please get them to try something else until they  find what is right for you. We choose whether we are going to try and live our very best life or if we are going to be a victim. There are different phases one goes when they have a chronic condition, fear, anger, embarassment, humiliation, frustration, acceptance......I  also when I was diagnosed I tried to find out why I got it........but truth be told there are no reasons for why.......but  there are many reasons why you try to do your best with the cards we are dealt. I am only offering my opinion and everyone is different....Thousands of people are living with this condition undiagnosed for twenty years. If you have any symptoms the best place for information is the Mayo Clinic. Only with acceptance will you be able to live a good life.....these are my opinions and are not meant to hurt anyone.   I hope this answers some questions which I have been asked lately. May we all have the very Best of Days, I thank you for your interest. take care, Cinner

Focus On This.

Hi Everyone,

things seem to be a little out of focus for me lately,

the above was done with some photo editing.

I quite liked the end result,

and I guess that is what matters.

............

It looks so very much unlike the original,

as I guess when some of us make it to our goal weights,

will we recognize ourselves.

I have never been able to visualize myself thin,

I can visualize myself healthy, but not thin.

Is that strange.

When I think of the end result.

I can feel me lighter,

more confident,

more energy, breathe with ease,

stay awake for longer hours,

less swelling, better circulation.

you see I have been all these things,

and that is what I want to feel again,

that is what I know.

I have never been thin,

and I really have no desire to be thin.

In better shape yes, but not thin

Do you think that is odd.

Maybe when you have come so close to dying,

it is about your health.

My skinny picture of me was 180

and I felt wonderful.

I felt wonderful at 268 when I married my second husband,

I was working full time, very active, always on the go,

but getting sick, gaining 50 pounds,

I know I hit bottom as I could no longer physically do.

With the Narcolepsy/ SevereCataplexy

Acid Reflux, imbiculus hernia,

sleep apnea, 

I admit that on some days I am scared,

and I want to live and that is why I keep trying every day

But I honestly don't care if I ever fit in a size 10 pair of pants.

At my last physical, no high blood pressure, everything was in alignment with where the numbers 

should be, no diabetes, etc.

and I thought to mysefl

are you kidding me.

For I know that my body with its inactivity, and loss of muscle strength,

is telling me all the warning signs.

And I am going to achieve my goal

to be fit, eat healthy and live a better lifestyle.

I have to admit with the Narcolepsy/Cataplexy

some days are very hard to stay awake,

I don't have control over that,

but I do have control over what I put in my mouth.

Heres to making better choices so we can all live longer.

Heres to feeling good.

Heres to keeping focused.

Have a great day,

Cinner

Aw Come On!

Hi Everyone,

In my part of the world winter has come,

the white stuff is falling as I type,

slowly, slowly to the ground,

we are supposed to get more more by the end of the day.

..................

Something is wrong with Mr. Musta.

there is no power for him at all,

I have put the information book somewhere and am searching

hi and low for that book to be found,

so hopefully

Mr, Musta and I can bond again.

.............

I have a bad cold and have been living on

hot Lemon and Chicken Noodle Soup.

I wear a CPAP for Sleep Apnea,

and have been unable to wear it the last few days because of the cold.

So in all honesty the Goddess is not quite the vision of Lovliness

I was hoping to have looking back at me in the mirror today.

I pointed and said Hey Lady your looking pretty good,

but you have had better days,

Go figure!

.........

Other than that all is well,

other than the tornado that has gone through every room in the house

looking for Mr. Mustas manual.

It is not like I am getting company

and if I do maybe they will help me straighten up my house.

Do you wanna come over and help.

I will leave the front door open,

and there are some rice cakes by the vacumme.

Come on I know ya wanna.

Just wake me up when your done,

and we could have a visit.

......

I am going to rest,

I don't want to be too tired when you get here.

Ah, in my dreams.

Have a great day,

Cinner

Good News

We have had an extremely beautiful day here,

I got the best results at my doctors office,

and then my SIL and I went and sat down overlooking the city

and had a morning coffee,

It was beautiful and peaceful,

just what I needed after being a little stressed this past week.

Dylan has made his way out of the hospital,

which is pretty amazing for four days,

and now he will be going through extensive therapy

to regain the use of his hand,

he already has some feeling in two of the fingers,

so this is good.

Thanks to everyone whom has inquired about him,

and for the kind messages. they were really appreciated.

So that is all I have for today,

The sun is shining, my hubby just got home,

and we can still catch about an hour of sun.

Take care until tomorrow.

ISometimes YOU just gotta shake your head....

As I play in my yard.

the cat is never too far away,

which some days is ok.

The other night I was sound asleep,

and I awoke to her sitting on my shoulder

and as I moved she slipped and tried to stop her fall,

The claws came out, and let me say

one of my girls got caught in the middle,

I screamed, the cat jumped down, my husband jumped up,

and says What the hell is going on?

Gee he seems a little grumpy

He proceeds to tell me when I am sleeping

to not let the cat sleep on me.

I am thinking, it was my chest that got scratched,

don't you want to see, let me show you.

Better put some polysporin on that scratch

Well alrighty then, I will  do just that.

Don't let the cat sleep on you honey,

he must be cheering up.

I  am thinking to myself,

I wear a CPAP machine at night,

that has a long hose that the cat

thinks is a string of yarn.

There is no door on the bedroom,

it is just the two of us in the house.

So I say, maybe we need to get a door to keep the cat out.

No reply, I waited......I reached out and said

Hey are you awake.

he says,

Why did you wake me up?

I could not resist, I said, Sorry I thought the cat was sitting on you,

You really should not let the cat sleep on you.

He says how would I know she was there if I am sleeping.

.....................

Lord, please give me strength,

that is what I said to him earlier.

................................

The next morning

he asked how I had slept and I knew he remembered nothing,

When I was getting dressed he said honey what happened to you,

You have a big scratch,

I said oh that was just the cat,

He said, maybe we should put a door on our bedroom.

......................

I  think I may need a vacation!

How ridiculous are some of your conversations?

I would love to hear about it.

.............................

I hope you have your 

Best Day Ever.

.........

just letting you know,

no cats or husbands 

were injured.

Sometime It Bites....

 

I am in control of my world and my actions,

and only I can continue challenging myself,

to continue doing, the responsiblility is mine.

.............

I guess I have always been a result-orientated person,

so having an illness and trying to lose wieght has wieghed heavily on me.

So I realized for me I had to get back to the basics for me.

I have thrown out my scale, yes it is true,

I have found I was getting too stressed about the numbers,

I am so thrilled for Anne, Katie J, SueAnn and how well you have all been doing.

I applaud you all and know how hard you are working at it,

You have been great supporters of me.

And I thank you and everyone else.

.........................

I try to have the best Day Ever every day,

What does that mean for someone with Narcolepsy/Cataplexy.

Somedays I can walk from my bedroom to my Kitchen without resting,

Somedays I can sleep every two hours,

Somedays I forget my medications because I am so tired I don't remember whether I have taken them or not.

Somedays I don't have the energy to walk my dog, or throw a ball,

Somedays I am physically and emotionally exhausted,

And somedays I can not pretend that it is easy or that I am handling it all okay,

Somedays I want to scream, and sadly today is one of them.

.......................

And then I remember Just be the best You can be with what you have.

That I can do for today.

I eat healthy, I drink lots of water, I have been doing Tai Chi,

I do Fit and Sit, I garden, I still do my own housework, etc.

And now I remember that I am better than I was, I am not falling over 24/7.

The old person I once was is not coming back, maybe there is a better one ahead.

Maybe I have already arrived.

This is me for today.

............

Take care.

The Jokes on Me!

 

Remember in my last post,

I stated how my muscles were aching,

and I was sure the exercise was paying off

because I could feel aches and pains

I had not felt in a while.

Well I have some kind of bug

that has pulled the rug from under me.

It must be a swarm of bugs

because I feel like _______.

...................................

My steaming hot bowl of chicken noodle soup,

As I lift my spoon to my mouth

I question,

why is it so heavy.

Instant relief as I swallow the soup,

feeling the warmth

sliding down my throat,

soothing for just a lingering moment,

and then it is gone.

I taste another,

some release returns,

There is a ringing in my ears.

I place my hand on my forehead,

It feels so hot to the touch,

I am shivering,

2 big blankets in hand,

I make my way to the couch,

I get all settled in,

I glance around

and this time my house wins.

Today it can stay as messy as can be.

for when I am feeling like this,

it would not matter if the Queen were visiting me.

And if she does,

I hope she will make me more soup.

It's got to be Liptons,

so I should leave her a note.

I am talking delirious,

so I close my eyes,

and I drift into la la land.

..........

I shall return

but probably not for a few days.

Take care.

Quit Horsing Around.

 

Hello, I need to quit horsing around,

I start, I stop, I do too much, or too little.

How did the horse know when to stop,

after all the sign is upside down,

and my signs are out of wack.

You see when I do something 

i go full guns a head,

and that is what I have done this week

with exercising.

I think with extra yard work,

extra stretching,

extra Spring Cleaning,

no wonder my arms hurt when I lift my coffee cup,

note some sarcasim and exageration.

try a lighter mug.!

I have fingers that ache from weeding under my rocks,

even though I was wearing beautiful

turquoice gloves ,

going down 3 steps

at my back porch,

has found muscles or sinew

that is extremely sore.

So every night I am soaking in my bath

with epsum salts, winding down after my day,

having just done me tai chi,

they have am and pm.

i will lay here a while longer.....

I turned my heating pad on 

so I will have a toasty bed 

to jump into.

...........

I am grateful for the pain,

no pain, no game,

I am grateful that I am not a quitter,

I am grateful I can come 

and say shite, shite,shite.

I am grateful that I made great food choices today.

I am grateful knowing that if I am going to succeed,

I will have to stay on course and do alot of changing patterns in my life.

I am very grateful I can.

I am grateful to be able to move more today

than a week ago,

I am grateful God is in my life.

I pray for guidance,

I am grateful for all my angels

that support and care!

Lastly tonight I am so thnkful

for the peppermint spray

my sister gave to me,

feels so good on the feet.

 Have a great night and an awesome Wednesday!

A round of Applause.

 

When I look at the picture of this tree,

it makes me think of a hand being held upright.

Can you see it?

A little, well I do.

Today I  had a Doctors appointment,

and all went well.

Once again it was a huge struggle for me making it down the long corridors.

I had to stop and have a rest on the benches.

I don't know if it is my illness, 

or if it has been deconditioning since my illness.

Anyway I will just keep doing what I have been.

Some days I get a little down about it,

I have to say reading all your stories continue to inspire me everyday.

Most of you are all doing so well,

and today I am giving you all a hand of applause

as you deserve it.

Some of you I have only know for a short time,

Some are the reason I started this blog.

All in all you do make it easier and keep me on my path.

Going forward, being determined, with hope.

Thank you all so much.

Have a great day.

Cataplexy ?

Hi  Everyone, Today is Something A little different.

I would love you to go over to my other blog

to read my post that is very dear to me.

Please click on the following link

http://thingsaboutwhowhatwhenwhereandwhy.blogspot.com/

Things About Who, What, When, Where and Why

I hope you all have a great day, Thankyou for being so supportive.

I would love if you want to become a follower on my other blog

as I am thinking about combining both of them.

Sometimes...

 

Sometimes 

I

want to stand at the waters edge,

or stand upon the pier,

I want to scream as loud as I can

and try to diminish any fears!

Maybe a pirate ship will come

and steal them all away.

That would be kind 

and ease my mind.

No fears, no tears.

Just peace!

Too Much Sleep

No, I did not bake this cake, although it looks tasty. I will not be eating any more cake!

I have decided this after watching Dr. Oz on Oprah!

I like him, I think he says enough that you realize just maybe I am headed for trouble!

One of the surprises was when he said that people on an average consume 150 lbs. of sugar every year.

He had bags of sugar sitting there, it was an incredible amount of sugar..

Another thing he said was if you drink a pop a day you r chances of getting diabetes increases by 83  per cent.

Boy I am just a bundle of great news today aren't I!

I will tell you the show scared the heck out of me.

Our family is genetically disposed to getting it.

,,,,,,,,,

So this is the thing, in the last month I have been so tired,

due to the fact that I have a variant of Narcolepsy,

Right now because of the excessive Day Time Sleepiness

I have been having a hard time with my exercising!

I sleep eighteen hours a day right now,

and do not ever feel rested.

I am not depressed,

this is all part of the illness!

...........

So I said to my sister that I now have fifty followers and how I am so excited about that!

that this year I have gained 50 followers and I don't believe I have lost a pound.

I know the only way I can get this going is to exercise.

I really am in a horrible situation,

knowing I have too, but most days I can't!

As I really worry about what is in store for me down the road.!

So this is getting honest with myself.

I have been doing very well with the eating,

but because I am back to sleeping so much again.

I had two days in January that I had some energy.

I know if I lost weight I would have more energy.

Imagine sleeping most of your life away.

I am not complaining or making excuses,

I am just getting real.

I hope I don't lose any of my followers,

I have been talking the talk, but I have not been walking the walk.

I hate being sick, and I don't want to get worse.

Anyway I can't beat myself up with this.

Just get on track tomorrow,

and try not to sleep my day away!

Take Care, I hope you have been doing better than I have lately.

Let's try to have our very Best Day!